Programme
Wednesday 24th June 2009
08.00-13.00 Animal Hydrocephalus Pre-Meeting Discussion
Session
14.00 Executive Meeting
17.00 Annual Business Meeting
19.00 Welcome Reception : Malone Lodge Hotel
Thursday 25th June 2009
08.45 Introduction; Welcome to Belfast
Dr Michael McBride
Scientific Session 1: Spina Bifida: Incidence, Survival &
Cognitive Outcome
Chaired by Rosemary Batchelor & Nan
Hill
09.00 Paper 1 Neural tube defects in 21st
century: Is Northern Ireland changing?
Tabib Dabir, Fiona Stewart, Nan Hill
09.15 Paper 2 To study the epidemiology of
Spina Bifida at our centre in India
Dr.Sangram Singh, Vigya Chourishi
09.30 Paper 3 Expectation of life and
unexpected death in open spina bifida: 40 year complete,
non-selective longitudinal cohort study.
Pippa Oakeshott, Gillian M Hunt, Alison Poulton, Fiona Reid
09.45 Paper 4 Pregnancy and labour in women
with spina bifida
Reinhold Cremer, Nils Hofmann , Friedrich Wolff
10.00 Paper 5 Living with spina bifida:
neurological and neuropsychological functioning in adults with
severely impaired psychosocial adaptation
Jan Stubberud, Gunnar Riemer, Karen Grimsrud, Pål-Erik Plaum
10.15 Paper 6 Cognitive and psychological
sequelae of hydrocephalus and spina bifida: correlating subjective
data and objective neuropsychological data to establish insight and
inform clinical intervention and guidelines
TL Edginton, JL Iddon, C Loveday , JD Pickard, DJR Morgan
10.30 Coffee
11.00 -11.45 Lecture by Retiring President: Prof.
Raymond Fitzgerald.
'Here and There with Hydrocephalus'.
Chaired by Carole Sobkowiak and Roger
Bayston
Scientific Session 2: Hydrocephalus
Chaired by: Waheed Ashraf & Conrad
Johanson
11.45 Paper 7 Visual field examination for
children with shunted hydrocephalus
Rudolph D, Sterker I, Till H, Gräfe G, Geyer C
12.00 Paper 8 Complications following
introduction of programmable cerebrospinal fluid shunts
Clark T , Hatlen TJ, Shurtleff DB, Avellino AM
12.15 Paper 9 Insulin like growth factor-1 and
insulin like growth factor binding protein-1 in the cerebrospinal
fluid from patients with hydrocephalus
F. Mashayekhi , Z. Salehi
12.30 Paper 10 Measurement of capillary
pulsations in the rat neocortex with twophoton laser scanning
confocal microscopy
James P. McAllister , Mark E. Wagshul, Shams Rashid, Jie Li,
12.45 End
Thursday afternoon and evening: Society Outing
Friday 26th June 2009
09.00-13.00 Parallel Breakout Session on Long Term
Management of Spina Bifida Patients
Scientific Session 3: Animal Studies
Chaired by: Deborah Sival and Jaleel Miyan
08.45 Paper 11 Brain damage in experimental
neonatal hydrocephalus: correlations between diffusion tensor
imaging and cytopathology
James P. (Pat) McAllister, Kelley E. Deren, Ahmed Shereen, Weihong
Yuan, Diana M. Lindquist, Scott K. Holland, Francesco T.Mangano
09.00 Paper 12 Changes in the protein
composition of cerebrospinal fluid from hydrocephalic H-Tx rats and
human patients
E.M. Rodríguez, K. Vío, R.I. Muñoz, K. Jaramillo, S.P. Valdivia,
D.Sival, A. Heep, H. Jones, E. Ortega, A. Catañeyra-Perdomo,
S.Rodríguez
09.15 Paper 13 Administration of anti-stem cell
factor antibody into the cerebrospinal fluid leads to increased
apoptosis in the developing cerebral cortex
F. Mashayekhi , Z. Salehi
09.30 Paper 14 Global neuroinflammation
patterns in experimental neonatal hydrocephalus
James P. (Pat) McAllister II, Jennifer Forsyth, Kelley E. Deren
09.45 Paper 15 In hydrocephalus, do protein
alterations correlate with gene expression?
Janet M Miller , Jordan Coggins, Adam Wojno, Dane Benner
10.00 Paper 16 Microglial downregulation in a
double transgenic mouse model associated with early-onset
Alzheimer´s disease (AD) after intraventricular implantation of
alginate encapsulated Glukagonlike-peptide-1 (GLP-1) producing
human mesenchymal stem-cells
Kathrin Harmening, Anna Heile, Miles Miller, Conrad E. Johanson;
Christine Wallrapp, Thomas Brinker, Gerald D. Silverberg, Petra
M.Klinge
10.15 Paper 17 Periventricular destabilization
and ventriculomegaly in aging rats: implications for reduced
neurogenesis and cognition
C. Johanson, A. Messier, M. Miller, C. Pascale, K. Vasudevan,
J.Donahue,E. Stopa, E. Sabo,I. Caralopoulos,P. Klinge, T. Brinker1
and G. Silverberg1
10.30 Coffee
Scientific Session 4: Hydrocephalus Shunts
Chaired by: Pat McAllister & Roger
Strachan
11.00 Paper 18 Abdominal catheter with
resistance can be an alternative in hydrocephalic children, when
shunt implantation is impossible due to prematurity or extreme
hydrocephalus
Arnell K., Nilsson P
11.15 Paper 19 An in vitro investigation of the
antimicrobial activity of silver -processed catheters for external
ventricular drainage.
Litza Vera, Waheed Ashraf, Alison Mills, Oxana Stephenson and Roger
Bayston
11.30 Paper 20 The importance of being vertical
- gravitational valves and angle of inclination at
implantation
Christian Sprung, Claudia Schulze
11.45 Paper 21 Implantation failures and
suboptimal positions of gravitational valves - with massive impact
on shunt dysfunction.
Barbara Vienenkötter, Andreas Unterberg, Alfred Aschoff
12.00 Paper 22 An in vitro study to
evaluate the antimicrobial activity of a shunt catheter against
Propionibacterium acnes
Waheed Ashraf , Litza Vera, Roger Bayston
12.15 Paper 23 Adjustable gravitational valves.
From the conception in 1996 to first implantations 2008
Aschoff A, Kiefer M, Kehler U, Hashemi B, Unterberger A
12.30 Paper 24 Modelling, estimation and
optimal control issues in cerebrospinal fluid dynamics Kalyan
Raman
12.45 Lunch
14.00-14.45 Special Lecture by Mr Neil Buxton, MBChB,
FRCS, Liverpool.
'Pain Management in Spina Bifida: Neurosurgical
Perspective'
Introduce by TBA
Scientific Session 5: Long term management of spina bifida
patients
Chaired by: Bill Arnold & John McCann
14.45 Paper 25 Preparation for adult
participation, starting at the beginning
Judy Thibadeau
15.00 Paper 26 Quality of life of African
children with spina bifida: results of a validated instrument
Catharine de Jong, Esther.Blokland, Hanneke Jansen, Janneke
Greving, Dan Poenaru
15.15 Paper 27 Independency in daily living of
adult patients with myelomeningocele (MMC)
Mikkel Mylius Rasmussen, Dorte Clemmensen, Claus Mosdal
15.30 Tea
Session 5 continued:
16.00 Paper 28 Decompensation of 'arrested
hydrocephalus' - 2 Case Studies
Josephine Hillan, John P McCann
16.15 Paper 29 Palliative care: recognition of
changing need in a children's spina bifida service in Northern
Ireland
Dr Nan Hill, Mr Roy McConnell, Mr David McAuley.
16.30 Paper 30 Journey into the unknown: a
survey into the effects of ageing on the health of people with
spina bifida and / or hydrocephalus in the West Midlands
area.
Geraldine Long, Jenny Green
Scientific Session 6: Poster Discussions
Chaired by: Hugh Richards &Esteban
Rodriguez
17.00 Poster 1 A Porcine Model of Hydrocephalus
Induced by Gamma Knife Irradiation
Ilias Caralopoulos , John Duncan III, Georg Noren, Edward Stopa,
Gerald Silverberg, Petra Klinge, John Donahue, Michael Park, Miles
Miller and Conrad Johanson
17.05 Poster 2 Expression of p73 in the
developing human subcommissural organ
Emilia M Carmona-Calero, , Ibrahim González-Marrero, Leandro
Castañeyra-Ruiz, Juan M González-Toledo , Agustín Castañeyra-Ruiz,
Héctor de Paz-Carmona, Maria Castañeyra, Isabel Hernández-Garde and
2Agustin Castañeyra-Perdomo
17.10 Poster 3 Choroid plexus differences in
rats with spontaneous and induced hydrocephalus
Agustín Castañeyra-Perdomo, Ibrahim González-Marrero, Juan M
González-Toledo, Leandro Castañeyra-Ruiz, Héctor de Paz-Carmona1
Agustín Castañeyra-Ruiz, Maria Castañeyra, Isabel Hernández-Garde
and Emilia M Carmona-Calero
17.15 Poster 4 A Swedish National Follow-Up
Programme for Children and Adolescents with Myeloemeningocele
Sven Mattsson, Margareta Dahl, Ingrid Olsson, Maggie Wendelius,
Lena Westbom, Eva Åström.
17.20 Poster 5 A 50 year natural history of an
untreated myelomeningocele - a rare case
Claus Mosdal, Mikkel Mylius Rasmussen, Dorte Clemmensen,
17.25 Poster 6 Changing needs for children and
adults with spina bifida and hydrocephalus in Northern
Ireland
Marie McGonnell
17.30 Poster 7 Tethered cord - a new animal
model
Dorte Clemmensen, Mikkel Mylius Rasmussen, Michael Pedersen, Sanja
Karabegovich, Claus Mosdal
17.35 Poster 8 A single-unit survey of bowel
washout practice in children with neuropathic bowel
David Marshall, Emma Kelly, Laura Connolly, Alan Bailie, Nan
Hill
17.40 End
Friday Evening: annual dinner at 19.30 in Great Hall, Queen's
University
Saturday 27th June
2009
Scientific Session 7: Urology and Bowel
Management
Chaired by: Ewen MacKinnon & Alan
Bailie
09.00 Paper 31 A survey of bowel washout
practice in children with neuropathic bowel in the UK and
Ireland
David Marshall, Laura Connolly, Emma Kelly
09.15 Paper 32 Effectiveness and independence -
different treatments of neurogenic bowel dysfunction in children
with myelomeningocele
Peter Wide, Mona Skevig, Hilde Arneberg, Finn Sommer, Gunilla Glad
Mattsson, Sven Mattsson.
09.30 Paper 33 Spend a penny independent - a
multidisciplinary project
Gunilla Glad Mattsson, Sven Mattsson & Marie Donlau
09.45 Paper 34 The double dutch technique:
split ileal graft and double Monti tube in ileocystoplasy
P.Dik; R. Chrzan; A.J. Klijn; T.P.V.M. De Jong
10.00-10.30
Special Lecture by Professor Sivert Lindstrom,
University of Linkoping, Sweden. 'The Bladder Cooling Test in Spina
Bifida'
10.30 Urology General Discussion
10.45 Coffee
Scientific Session 8: Spina Bifida
Chaired by: Carole Sobkowiak & Gillian
Yaz
11.15 Paper 35 Fractures in children and
adolescents with spina bifida - experience of a Portuguese tertiary
care hospital
Humberto Marreiros, Luísa Monteiro, Clara Loff , Eulália Calado
11.30 Paper 36 Urinary calcium excretion in
children with spina bifida: correlation to level of lesion,
mobility and frequency of fractures?
Marcus Pauly, Reinhold Cremer
11.45 Paper 37 Review of cumulative diagnostic
radiation exposure during childhood in patients with spina
bifida
Gregory Smookler, MD
12.00 Paper 38 The impact of continence -
reviewed fourteen years later
Lissa Higgins , Sheilagh Reid
12.15 Paper 39 Fetoscopic closure of the MMC
followed by caesarean section may have a beneficial effect upon
neuromuscular condition in spina bifida aperta.
Renate Verbeek, Axel Heep, Natasha Maurits, Reinhold Cremer, Oebele
Brouwer, Johannes van der Hoeven, Deborah Sival
12.30 Paper 40 Hypoventilation and sleep apnoea
in spina bifida - an unrecognised problem?
Josephine Hillan, John P McCann
12.45 Closing Remarks: Stephen Brown & Roger
Bayston Invitation to Vancouver by Bill
Arnold
13.00 End
Break out session on Long Term Management of Children with Spina
Bifida: Friday 26th June for Nurses & Health Care
Professionals
Organised by Emma Kelly: emma.kelly@belfasttrust.hscni.net
09 00 - 09 15 Introduction to team in Belfast
09 15 - 09 45 Marie McGonnell, ASBAH: Her role in supporting the
family.
09 45 - 10 15 Coffee
10 15 - 11 00 Mary White: Continence management in a school
setting.
11 00 - 11 15 Discussion on the management of neuropathic
bladders in other centres.
11 15 - 11 45 Sally Howells, Emma Kelly, Laura Connolly:
Peristeen rectal irrigation system: demo & case
discussions.
11 45 - 12 00 Discussion on care of neuropathic bowels in other
centres
12 00 - 12 30 Finola Beattie: Physio in children with spina
bifida.
12 30 -13 00 Networking opportunity for staff and questions.
13.00 Lunch and join the main meeting for the afternoon
session
Guest Speaker: Mr. Neill Buxton
